Research Data Management
Human Subjects Data (Privacy & Confidentiality)
UO Research Compliance Services provides detailed information on protocols for protecting respondent confidentiality.
American Anthropological Association: Code of Ethics:
- See III. A. for some general guidelines
- See also AnthroDataDPA Report, Privacy and ethics, pp. 45-47.
Archaeological Institute of America Code of Professional Standards
- See 1. “Responsibilities to the Archaeological Record”, paragraphs 4 and 6, for requirements regarding preserving data and the need for plans to that effect.
- See paragraph 1.
Biomedical and Health
U.S. Dept. of Health and Human Services, Office for Human Research Protections (OHRP) – Policy & Guidance Library
U.S. Dept. of Health and Human Services – an explanation of the HIPAA Privacy Rule in research
U.S. Dept. of Health and Human Services, National Institutes of Health – Protecting Personal Health Information in Research: Understanding the HIPAA Privacy Rule
This code was very recently updated and contains a lot of information about handling data. See sections 12 “Confidentiality”, 13 “Informed Consent”, and 14 “Research Planning, Implementation and Dissemination”.
American Folklore Society – AFS Position Statement on Research with Human Subjects
Geospatial Data organizations
Urban and Regional Information Systems Association (URISA) Code of Ethics
American Political Science Association’s page on Ethics in Political Science -- includes the APSA Guide to Professional Ethics in Political Science, 2nd edition, revised 2008
- See Principles Governing Research on Human Subjects, p. 27
American Psychological Association’s Ethical Principles of Psychologists and Code of Conduct
- See Standards 4 and 8: Privacy and Confidentiality; Research and Publication
- See Ethical Standards 11; 12, Confidentiality ; Informed Consent
- See section 5.02 “Evaluation and Research”
- See D. Responsibilities to Research Subjects
American Statistical Association (Committee on Privacy and Confidentiality)
Federal Committee on Statistical Methodology, Confidentiality and Data Access
ICPSR Guide to Social Science Data Preparation and Archiving, 4th ed. – see Chapter 3 (Confidentiality in Qualitative Data, p.19) and Chapter 5.
Privacy-Preserving Data Publishing: An Overview by Raymond Chi-Wing Wong and Ada Wai-Chee Fu. Synthesis Lectures on Data Management. Morgan & Claypool Publishers, 2010 [UO Users Only]
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